In October, we reflect upon ways to promote our commitment to the pro-life cause. Last week's Gospel message encouraged us to be good stewards of the Vineyard that is entrusted to us. Perhaps metaphorically we are reminded of our brothers and sisters who enter this world with mental retardation or other kinds of handicaps (cystic fibrosis, cerebral palsy, etc.). In some cases, these children are aborted after a genetic screening detects their condition. The church rightly stands against this, of course, but when we encourage the birth of all infants do we also take into account our responsibility of supporting these children throughout their lives? And, of course, their families? Does the Church speak out as much as is needed on this responsibility?

Four decades ago Geraldo Rivera made an unannounced visit to the Willowbrook Developmental Center on Staten Island, New York. He discovered New York citizens—those with mental retardation—living in conditions of incredible filth, neglect and abuse. A visiting congressman is quoted in the film saying "I've been in the worst jails and penal institutions in this country, and the worst brigs in the military, and I've never seen anything as horrible." Rivera did a follow-up ten years later (1981) on ABC's 20/20 and found many improvements, but there were still many more things needing to be done. These two television shows prompted outrage but even more—meaningful changes and oversight within institutions and programs for the developmentally disabled.

Recently I discussed Willowbrook: The Last Great Disgrace with students in my class at Marist College. Thinking aloud to myself, I wondered if there were things going on now in the world—circumstances regarding people with developmental disabilities—that, in future decades, would cause concern or even outrage among others when they look back at these decades of the early 20th century with historical hindsight. One of my students sent to me a recently clip from the Today Show where Ann Curry reports on the still-degrading conditions present where the developmentally disabled are cared for in Serbia. The horror might even surpass what Rivera found in the USA four decades ago.

Just as every year Christians celebrate the tremendous leap from death to resurrection, another recent story brings joy to us amidst the sorrow from Kosovo and other as-yet unknown places. In the October 4, 2011 National Review Online, Kathryn Lopez celebrates a young woman with Down syndrome who has been named Homecoming Queen at her high school. Wouldn't it be great if every parish found a way to celebrate citizens who have been born with different genetics than the rest of us? Lopez cites the blogger who discovered this story:

One downside to going to an all-girls high school was that we didn't really have the true experience of homecoming: The pep rally, the football game, the dance, the homecoming court, etc. I never really thought much of having missed out, but now that my own daughters are attending a public high school -- and one boyfriend is a contender for Homecoming King -- I can see that it is really something to experience. [Here is a young lady]known around the school for being a real sweetheart, and a true blue fan of her high school football team. She and her parents were simply thrilled that she made the top four. Watch as Mariah Slick -- who just so happens to have Down syndrome -- is announced Homecoming Queen with her dad by her side.

William Van Ornum

 

Comments

Kristen Witkowski | 10/10/2011 - 9:11pm
I've watched the Homecoming Queen video a couple of times and it makes me smile everytime. Perspectives on how people view people with disabilities have changed dramatically and I believe society is headed in the right direction. Years ago, diabilities were seen as a burden to society and these people were immediately outcasted, many since birth. Instead of wanting to ''get rid'' of these people, society now wants to help them. I loved in the video when one students talks about how Mariah is a loving and sweet girl because it shows how the students really tried to get to know her and treated her like she's just like any other student in the school.
I was completely shocked and confused when we watched Willbrook in class. I could not believe people treated other human beings like that. I was so disturbed to see the conditions these people had to live in and how they were given no chance at all to get the help they needed. I do not understand why these people with disabilities were treated like they were not people at all. I am thinking about being a special education teacher and I cannot even imagine how this could have happened. It's good to know that society has changed it's view but I'm still worried that this is occuring in other places in the world. People with disabilities deserve the same rights as any other person.
we vnornm | 10/10/2011 - 3:03pm
Yegi,

One great thing about teaching is that I learn so many things listening to students and what they learn on their travels. What you mentioned about Japan is very sad. bvo
we vnornm | 10/10/2011 - 3:01pm
Kit,

You caught my main theme perfectly. It's easy to talk about pro-life etc. but much harder to devote our time and resources when handicapped children with genetic problems are brought into the world. And perhaps to not do so is a form of hypocricy and neglect? Perhaps I am being too harsh, but the thought does cross my mind. tx bvo
we vnornm | 10/10/2011 - 2:59pm
Chelsea,

I cringe a bit at special education students being pulled out of the class in Catholic school and taught in a trailer. But as has been noted, there are systemic problems involving how the government pays schools for special education. Glad you have chosen to work in special education! bvo
we vnornm | 10/10/2011 - 2:57pm
Stephanie #37

Good points all. And let's hope the day is coming when a Down syndrome Homecoming Queen will be a commonplace occurrence and won't require special media coverage. bvo
Chelsea DiFrancesco | 10/9/2011 - 7:08pm
I cannot begin to explain the feelings of disgust I had after watching the footage from Willowbrook and Serbia. During the intervention period of Willowbrook (and other similar institutions), the research and experience with working with people who have special needs was limited. Now, decades later, Serbia is in the same situation as Willowbrook, except they have resources to look to. So much has been done for people who are developmentally disabled and have cognitive impairments since Willowbrook. It is astonishing that it is taking so long for Serbia to change their ways when they are well aware there are other methods that lead to such success for this population.
Despite the progress in the United States since Willowbrook, there are still issues to be worked out. I attended a Catholic high school, and I was not impressed by their idea of special services. There was never an aide in any of the classes, so students who needed extra support were pulled out of the class. The resource room and special education teacher were located in a trailer outside of the school, which as you could imagine, was pretty alienated. The school itself did not actively acknowledge it’s special education resources, so if I were a parent with a student who needed more support, I would not send my child there.  People like us going into the field of special education have goals to raise awareness and spread our knowledge in countries that need a complete awakening (Serbia), and to also make sure everyone in America gets the resources and treatment necessary for success.
Stephanie Deickler | 10/9/2011 - 1:54pm
After watching the msnbc report about Serbian psychiatric hospitals and social care institutions, I was devastated. The inhumane treatment of the mentally disabled is appalling. According to the article, a girl attempted to gouge out her eyes and the hospital staff witnessed it and did nothing. The conditions are reminiscent of the conditions in the mental institutions at Willowbrook in the 1960s-80s. Because of public outcry against the abuse and neglect of mentally handicapped patients, thankfully Willowbrook was closed in 1987.  This was supposed to be a school and a school has a job to educate whoever attends. Willowbrook, like the institutions in Serbia, treat their patients like animals. They are indefinitely being tortured and mistreated when they are humans. They ARE normal and are not just “retarded” people. A person is a person no matter their mental capacity or physical appearance.
It is upsetting to still see so many stereotypes today about people who are different. I want to be involved in special education to help those who need it but also to educate others. People need to start looking for what people who are considered mentally handicapped CAN do-looking for their abilities rather than dwelling on their disabilities. People may be shocked at what they can learn from some of these great people who are sensitive, intelligent, and loving beyond all measure. It is frustrating how there is a stigma and misunderstanding of the intellectually disabled. The term itself has changed from mental retardation to intellectual disability which should be upheld.
The video about the homecoming queen is a great step towards acceptance. However, I do not think it should be over-publicized and made to be such a big deal. This is because she is just like any other high school girl who got voted homecoming queen. Good for her and the people who voted for her, but she is just a normal girl and should not be receiving so much attention to the point where it seems to be just about the disability, than about who she is as a person.
People with developmental disabilities deserve to be treated as the full citizens of society that they are, nothing less. The self-advocacy movement can help to promote the rights of those with disabilities, allowing them to make decisions about their life and function in society. I hope that videos such as those about Willowbrook and the conditions in Serbia will open people’s eyes to the underlying issue of stereotyping and judgment.

Stephanie Deickler
we vnornm | 10/9/2011 - 1:35pm
Amanda, Amanda T., and Lauren (#21, #22, #23),

Thank you for your comments! bvo
we vnornm | 10/9/2011 - 1:34pm
Dorian #28

We can be thankful that in the USA and many other places-things have improved markedly for the developmentally disabled.

Serbia is extremely sad.

Please, don't cut out of school yet. Maybe a bunch of us should take to the streets in Serbia? (just kidding...) bvo
we vnornm | 10/9/2011 - 1:31pm
David,

The book "A Thousand Frightening Fantasies" (NY:Crossroad, 1997) features St. Ignatius and points out that his own "self-cures" are exactly the same as what modern psychologists do in cognitive-behavioral tgreatment. The example you give would be termed "response prevention + exposure" with some "flooding" added. bvo
we vnornm | 10/9/2011 - 1:29pm
Michelle,

Interesting responses from your past.

Wow...only one Down syndrome person on the entire island where you live!

That's the same number as lives at my house! :-)  bvo
we vnornm | 10/9/2011 - 1:27pm
Janice #30,

Thanks for your carefully written responses-always a good blend of personal experience and considerable reflection of other sources. bvo
Michelle Russell | 10/8/2011 - 11:59pm
In my home town in southern Alabama, there were wonderful resources for the developmentally disabled, although I heard of other places where it was not so good.  As a young gymnastics teacher (1986-1989), I worked with the area association for "retarded citizens" and some of their adult clients.  The teachers and others who came with the students were some of the kindest and most caring people I have ever met.  Fridays were the highlight of my week, since that was when the bus from "MARC" came with around 30 - 40 developmentally disabled adults.  Only one or two of the students were able to speak, and many had physical disabilities as well, but they so enjoyed the time in the gym.  I've never seen so many happy faces!  When I went to college, I took a graduate level education course in which we went to a local public trade school which taught primarily those with Down Syndrome - again, a wonderful place.  I always hoped this was the way things were everywhere, but the "Willowbrook" expose' showed otherwise. 
I remember talking with my mother, a "gifted and talented" special ed teacher - the opposite end of the spectrum, about my joy in working with these students.  She said she would only want to help them by doing everything for them - to which I remember saying: how will that help them?  I do think many well-meaning people don't see the potential in many of the developmentally disabled and therefore have very low expectations; I wonder if that can create an atmosphere where subhuman treatment is seen as OK?  Where the beautiful potential is not seen, not nurtured, and therefore the level of care is somehow diminished relative to the vision of what these special citizens can "do"? 
I have recently taught gymnastics to a young girl with Down Syndrome, the only such child here on the island, and her mother kept putting her in my class because I was "the first teacher who worked her to her potential."  Maybe I missed my calling!  But aren't we all called to live and grow to our potential, and in turn to help those around us realize their potential as well?
JANICE JOHNSON | 10/8/2011 - 11:16pm
Welcome back, Bill, to "America".  I'm so glad that your schedule allows you to work in the writing of your wonderful, always stimulating and inspiring blogs.  I hope it is okay that I get a bit verbose in my comments...........Tim may think I'm taking up too much space!....eh, Tim?  But, I guess I'll be advocating for our kids and families until my dying breath. 

I wish you God's blessings in all you do.  My best to your lad, too.

janice johnson
david power | 10/8/2011 - 10:43pm

Janice,

I was speaking to a friend recently who suffers from OCD in a bad way.He went on the camino fo Santiago and as he was describing it all it was uncannily like the story of St Ignatius.
There was a man with an incredible amount of OCD.
In his biography or autobiography he shows how he uses his OCD or how he overcomes it in spiritual ways.He was a little bit of a hypochondriac and in one incident when he went with a doctor friend to a house of someone suspected of having the plague Ignatius caressed this person on the head to console them.Later as he was leaving the house he noticed a little mark on his hand and started to think that it may be the onset of the plague.What did he do?The Mad Basque pushed his entire fist into his mouth and said to himself "if your hand has this illness your whole bloody head can have it too",problem solved.       
His life story is fascinating and his spiritual genius unmatched in my opinion.
Dorian Misitano | 10/8/2011 - 7:11pm
When I saw the film, I was shocked to see the squalor that these children were living in.  From past courses, I knew that they were bad but I really had no idea.  I was confused as to how any parent could knowingly subject their child to these conditions.  My professor said that the parents did not know what else to do and that the doctors were suggesting the institutions for the children.  Seeing and knowing the amazing things these exceptional children can do makes me wonder our old way of thinking.  Knowing that there are still places like Willowbrook make me want to cut out of school and try to help.  I hope that things will improve sooner than expected.
JANICE JOHNSON | 10/8/2011 - 1:20pm
Bill,  your question about whether any saints were developmentally disabled is a good one for Fr. Martin.  St. Thomas Acquinas, "the dumb ox" was thought to be retarded, but of course wasn't but may have had learning disabilities.  I think it is quite likely some saints had disabilities along the autism spectrum,,,,aspergers, autistic savant. It would be interesting when reading the lives of saints to see if there is evidence of developmental disabilities.  I'll keep that in mind.

An easier question is whether any saints had mental disorders.  Hagiographies describe a number of saints having eating disorders, OCD  (St. Ignatius) depression (Mother Theresa).  Anxiety and depression during the dark nights of the soul.  Reading about these saints gives those of us like me who suffer from some form of mental disorder, comfort and hope.

Of course I think that my children are saints, though I doubt they will be canonized!"
we vnornm | 10/8/2011 - 12:36pm
Bonnie,

I've just been reading some of the other postings on the other blogs-including those on "saints" and Pope John Paul I who burst upon our world like a bright meteor and left too quickly.

Perhaps Josh whom you describe a a "ray of sunshine" is a similar gift to the world as the individuals just descrbed.

Does anyone know if developmentally disabled persons have ever been canonized?

Bonnie, you will meet many others like Josh in the future! bvo
B A | 10/8/2011 - 12:05pm
Although the video about Willowbrook is decades old, I'm affraid that what took place there is still talking place around the world. Although the children and adults in Willowbrook are mentally disabled, they are people first and should be treated that way. While watching the video in class I had a knot in my stomach. I immeidately thought about the students in the self-containted classrooms in my public school. From an early age I knew I was interested in working with children with special needs. When I was in the afterschool program, Josh, one of the students in a self-contained classroom, was in the program with me. Josh is a ray of sunshine who is trumendously talented in math. Eventually, he came to high school and in hallway he rememebered me, smiled and always greeted me warmly. Years have passed since I've graduated high school and I often wonder about Josh. I was so happy when I saw him in the grocery store with his mom. He was able to read the grocery list, pick the correct item from shelf, and cross of the item on his list. We chatted for a few minutes and it's evident that is happy. The movie broke my heart because I imaged what would have happend to Josh if we was there. Although he may never be able to live on his own, he is a very capable and intelligent person. I may not ever get to be Josh's teacher, but I'm looking forward to teaching and working with other children like him.
we vnornm | 10/8/2011 - 10:43am
Thanks to all for reading and for your good thoughts. bill
a tuck | 10/7/2011 - 4:24pm
I have watched the homecoming video now a couple of times, and without fail each time I got chills down my arms, a smile on my face, and a feeling of progress to world without discrimination.  That girl's experience reminded me of the commercials of encouragement for the Foundation for a Better Life that are often played on television and are based off of real life experiences.  One in particular is a Down Syndrome girl becoming homecoming queen just like the video above.  
     However, I did not have the same reaction after hearing about the conditions at Willowbrook.  These are human lives, deserving of the same rights as any other individual.  That is why the question of abortion would not even be an option in my eyes because all unborn lives are a gift and all humans deserve a privileged life just like you and me. 
Thomas Belmonte | 10/7/2011 - 2:27pm
I sat down thinking that writing a reaction to this would be easy and that describing my response to the “Serbian Willowbrook” would be a simple task. I was abruptly forced to think twice. I figured I had seen mental hygiene facilities at its worst in Willowbrook, but what I saw happening in Serbia yet again, abruptly changed my mindset. The trouble I’m having now is putting what I saw into words. How can I relay what atrophy looks like?  What words can describe the children’s empty looks?
            It hit all too close to home when Ann Curry pulled back the sheets on a 21-year-old patient. Being a 21 year old myself first made me think of all the things I’ve seen and experienced in my lifetime and secondly, think of all the things that patient hadn’t seen and experienced. While I sit at my desk, in my own room, in a nice house, with my laptop computer and ipod tightly attached to my side, I cant help but feel absolutely unappreciative for what I have. While I gallivant around this world, there are people that only wish to be flipped in bed so the atrophy wont set in. I always thought that I was good at looking at things from others perspectives, but I find it nearly impossible to place myself anywhere near the nightmare these people are living. Id be better off trying to place myself in the perspective of the cattle that receive better treatment. All in all, the “Serbian Willowbrook” has made me realize how lucky we ALL are, and that the givens in life like walking or nurturing human contact are not promised to everybody. We must appreciate what we have, no matter how small or minute it may seem, because no matter what, someone in this world dreams for what you have.  
david power | 10/7/2011 - 1:21pm
Welcome back Bill,

I was happy when I read your name under the posting.
In Ireland growing up and in the schools I went to there was great care for the disabled and I know of many people who deal with them.
In Rome I had a friend who was in charge of the spiritual formation of teenage boys and he would always invite them to come with him on his visits to houses of care for those with mental and physical disabilities.
He recounted to me the story of one young Italian boy who was repulsed the first time he went there and in true teenage fashion stated the same to my friend.The problem was that after the visit my friend brought all of the boys to play basketball and you couldn't get the ice-cream before you ate your vegetables so to speak.After a few encounters there was an incredible change in this young guy and he soon built up a great rapport with a few of the disabled people and it had an impact on him in other ways too.
My own niece is in a wheelchair and as the years have passed I have come to see it  less   as an imperfection(though it is difficult for my sister-in-law) and more as a particularity.  God makes us unique!
I offer you this song sung by perhaps Ireland's favourite singer which speaks of the autism of the songwriters son.

http://www.youtube.com/watch?v=YTBC7ckTWpo    
CY Kim | 10/10/2011 - 2:24am
After recently viewing the horrible institute Willowbrook, I couldn’t help but reflect just how much America has improved since then. Institutions like Willowbrook are unheard of in America because it would be considered torture. Now children everywhere are able to go to school and be in clean safe facilities. Under FAPE, all students are entitled to a free appropriate public education.
Unfortunately, although America has been progressing, it is unfortunate to see that other areas in the world, like Serbia, are not doing as well as other countries like America. I also know for a fact that Japan is almost no better when it comes to children with a disability. In Japan, it is normal for society to conform to the norm. There is a saying in Japan for what should be done those who stick out compared to the rest of society: “hammer in the nail that is sticking out.”  Citizens who are loud and outspoken are looked down upon by the rest of society. Parents of children with disability are ashamed of being looked down upon by the rest of society and try their best to seem “normal.” Many times, those with a disability do not get the luxury of leaving their own house. They will receive the love of their parents, but because society does not want to have an abnormality, the parents will hide their child away for the rest of their life. While I was in Japan, I have only seen one child with down syndrome. It is sad to know that parents would rather put being ashamed of what others think of them in front of the love for their own child. 
K Stebbins | 10/10/2011 - 2:10am
Pro-life and pro-choice will always be an interesting debate. The topic of pro-life relating to the responsibility of caring for the child, especially when they have special needs is a very serious and sad issue.
It is easy to say, “I am pro-life” however, it may not be so easy for certain parents to agree to taking on a 24/7 responsibility over a special needs child. When the encouragement of birth to all infants is administered, we need to concentrate more on what happens next: what care will the child be given, will the child have a good life, will the child be in a good living situation, will the child be given the help that he/she needs etc. Most of the time, in these sad circumstances, the child has no control and it is solely the responsibility of the parent.
Learning about Rivera’s reports on Willowbrook brings chills up my spine. It is not fair and unacceptable. When brought to an institution as awful as Willowbrook, the child is unable to grow in every sense of the word, they are not given a chance. It is important when making the decision to be “pro-life” that the child will be supported throughout their lives.
Watching Mariah Slick’s father cry tears of joy as his daughter with down syndrome wins Homecoming Queen was indescribable.  Mariah was supported throughout her life and continues to be supported and that has brought her far. This makes me believe that any of those children in Willowbrook could have been given great opportunities and happiness just as Mariah Slick had if our backs hadn’t been turned on them.
Perhaps we should be focused less on being “pro-life” and “pro-choice” and really look into the issues it raises such as responsibility.
Amanda Bovi | 10/7/2011 - 2:54pm
I have viewed the footage of the conditions of the Willowbrook institution, and it was horrific to see.  I could not fathom that people with Down Syndrom were treated with almost no care.  They lived in filthy conditions, contracted many diseases, and had no educational instruction.  I was enraged when I saw the footage.  
This video shown at the end of the article demonstrates how accepting and welcoming people have become regarding people with disabilities.  I was thrilled when I saw the young woman with Down Syndrome receive the title of homecomming queen!  I have a cousin with Down Syndrome, and it brings me gret joy when I see people attempt to make my cousin happy.  The people who attended high school with the young woman with Down Syndrome truly made her dreams come true by voting for her; it is admirable that people have become so accepting of people with disabilities since earlier decades. 

Lauren Schultz | 10/7/2011 - 2:28pm
Growing up in my Catholic church, I learned that God has a purpose for everyone, no matter what one's intellectual or physical capabilities were. I grew up with a cousin who had Down Syndrome and he was embraced by his parish; he was an altar boy and loved every minute of mass. I think it is important that the church embraces these differences and teaches the young children of the future that it is okay to be different. The church does promote pro-life and I think it is important that the church reminds people to turn to their local parish when they are need of help; that is why they are there. I think that the church has a firm stance of every child has the right to live and afer watching Willowbrook, it is evident that the world should take a clear look at how we treat children with disabilities. We have come a long way since Willowbrook but there is always room for improvement, especially when it comes to the children with disabilities. As a future teacher who will work with special needs children, I think it is important to remember that every child can learn something and can help you learn something about yourself. In order for that to happen, one must be open and willing to learn from these disabled children because they will certainly teach you something in return.
JANICE JOHNSON | 10/7/2011 - 1:16pm
Mr. Kash, #10
I think Bill's question about the church which you quoted is very appropriate and worthy of discussion especially this month dedicated to respect for all life.  I can only write from my own experience: personal, voluntary and professional over a span of 45 years.  In all that time, involved as I was in different parishes, there has been very little support or speaking out on behalf of the developmentally disabled or mentally ill.  I hope by writing of my own experiences to (very poorly I have to admit) bring awareness 0f the sufferings of our families .  I think if Catholics were more aware they would respond with Christian love and support.  It is a matter mainly of education and a blog such as this one is very helpful!

The suffering of families is often immense.  When parents are lovingly supported and given adequate resources, the children thrive.  That kind of support is very hard to attain.  As I earlier pointed out, in the state of CA which has a humane law that provides rights and services to the developmentally disabled, services are being cut and threatened by the financial criisis.  I think of states such as Mississippi, Alabama, etc. and wonder how badly their people are suffering.  (Not to mention, Kosovo, Africa, India and China). 

The stresses on families may be unimaginable to many.  As a social worker for Child Protective Services, I knew far too many families in which the disabled child had been abused or neglected.  The stress on marriages and frequency of divorce, leaving one parent the responsibility of raising and caretaking the child is common.  When I was divorced and committed to the care of my children I did not seek an annulment as I knew I would never remarry and I knew that my professional growth and promotion were limited.  That is reality.

I wonder if any studies have been done on health and morbidity of parents.  I once had a large support network of other parents.  I now have only one person as the others have died or are incapacitated.  Depression, the grieving over losses, and anxiety about our children's futures are part of our lives.  We are sometimes in as much need of services as our children!!

Welcome back, Bill.
Marie Rehbein | 10/7/2011 - 11:42am
Hi, Bill, good to see you back. 

I want to reply to your question about the public school experience you directed toward your students. 

When I was in public high school, it was the beginning of mainstreaming the disabled.  There were special classes for these students, but they were on their own between classes.  Some of my fellow students did not know how to respond to this new kind of student.  Most of us just ignored them. 

As you probably know, teenagers are big into conformity despite their frequent nonconformity, and the disabled students, particularly those with mental disabilities, did not conform.  They made the typical student uncomfortable, and the reaction of some was to make fun of the disabled students.  I am thinking particularly of one girl who drooled and could not speak, who seemed both intrigued and frightened by her new circumstances.

I did not make fun of the student, but I also did not engage with her.  The joking of the other students made me uncomfortable, but I did not know what to say until after I had graduated and had the opportunity to see this student in a restaurant with her mother.  There I saw a different person who had an emotional bond sustaining her, and I thought that the mainstreaming movement was the stupidest thing that was ever undertaken because of how it was done.

It is wonderful that people, generally, and teenagers, in particular, are these days able to feel compassion for people with mental and physical disabilities, but it wasn't that long ago that these people were shut away as embarrassments to their families.  These days, people with disabilities come to schools with assistants who help them and engage with the other students, which is so much better.
we vnornm | 10/7/2011 - 10:59am
Cheryl,

Often children themselves are the kindest...especially toward the most vulnerable, and as you point out, they learn this by experiencing love from their parents and other important persons in their lives while growing up. bvo
cheryl rifen | 10/7/2011 - 10:41am
After watching the video on Willowbrook, and spending time this morning watching the 3-part video series of Ann Curry's coverage of Serbia, I have a horrible, unsettling feeling within me.  How can these people get away with this? It did appear in the Willowbrook video that some advances had been made when Rivera returned years later, but there is still so much more that can be done.  I do agree that until this becomes much more widely televised and given more attention, it is going to continue.  We have a responsibility to give people born with developmental disabilities the opportunities and rights that they deserve. The homecoming video was enlightening, and showed me that in some parts of the world people treat people the way they deserve to be treated, with respect and dignity.  They take the time to get to know them, and find out they are someone with kindness.  Recently, my daughter had a ''little person''. join her school.  She quickly realized that this student was normal, and deserved to be treated with kindness. It is through how we parent our children, that makes them aware and gives them the ability to confront situations like this in the correct manner.  People need to remember the old saying of, ''Cant judge a book by its cover!''
we vnornm | 10/7/2011 - 6:14am
NOTE TO MY STUDENTS:

(address, if you wish....)

If you went to a Catholic school, what kinds of efforts/programs involved the developmentally disabled? Could more be done?

What kinds of programs, services, did you observe if you went to a public school?

In your parish, are there certain "hot button" issues that seem to be addressed at the possible exclusion of others? What are parish activities you've seen that focus on the developmentally disabled? Are more needed????

tx bvo
we vnornm | 10/7/2011 - 6:02am
David:

(1) I suspect there is more unhappiness in general in the developmentally disabled population. Since much depression is due to "learned helplessness", a higher incidence of uhappiness makes sense because these folks many times have to ask, wait, or "act out" to get others to help them make things in their life come about. There i even a speciality growing within psychiatry and psychology, the "dually diagnoses", those with psychiatric problems (often major depression) and developmental disabilities.

(2) Many/most need special attention, especially when very young. If you revisit the Willowbroook or Serbia video clips above, you will see the staggering suffering that occurs when special attention is not provided. Fragile? Approach them with the same human gentleness which any other person deserves.

(For our Republican/Libertarian readers, note that Early intervention programs are one of the most cost-effective education programs, saving millions of dollars of government expenditures in future years, kind of like an inverse "social security".)

(3) Yes-we (and they) recognize false sympathy, condescension, or Pharasaical (sp?) attempts to spend time with them to look good to others. (But are such imperfect interactions not better than the kind of utter neglect depicted at Kosovo or Willowbrook?)

(4) A diverse and wonderful group of people! One of the high points of my week is when, each week, I visit a large center that serves 300-400 developmentally disabled folks!

amdg, bill
we vnornm | 10/7/2011 - 5:48am
Mr. JK:

Your question deserves a thorough answer, as I suspect it may be in the minds of other readers. I was thinking specifically of the Kosovo situation, which "broke" in the media via a secular news outlet. I have heard first-hand reports of severe abuse of the mentally retarded in Africa, and I have yet to hear these included in the many lists of injustices and poverty which the Church aims to address on that Continent. Perhaps someone can offer us more info? Perhaps the Catholic Foreign News Services will address these sad situations?

Another part of my thinking involves how certain "hot button" issues in the pro-life area seem to garner nearly our total attention, while others remain in the background. The topic I write about here, from my view, remains dwarfed by the others. i suspect that as a regular reader you have a good sense of what I'm talking about.

Finally, those now attending Catholic schools have limited direct experieced with those who are developmentally disabled-not due to direct "denial" but because public funding pays for special education services in public schools. It is much harder for Catholic schools to harness this funding, although recent presentations at the National Catholic Education Association (NCEA) are showing creative ways for Catholic school districts to access this funding. So let's hope there will be some Homecoming Queens and Kings in the future of the kind above, albeit in Catholic schools.

I hope you can see that my asking the question I did is not a way to find-fault with the Church, but rather to encourage greater participation in this area. tx. bvo
we vnornm | 10/7/2011 - 5:37am
Gabriella,

Thanks for pointing out how certain other "hot button" issues seem to take over the discussion ground. Interestingly, last year we discussed here the case of a woman who was executed-despite evidenced of her being mentally retarded. You might find this story interesting in view of our class in Psychological Testing and also in view of the Commonwealth of Virginia's historical record on forced sterilization of the mentally retarded, covered in chapters 1 and 2 of our textbook. tx bvo

http://www.americamagazine.org/blog/entry.cfm?entry_id=3460
Anonymous | 10/7/2011 - 12:02am
''The church rightly stands against this, of course, but when we encourage the birth of all infants do we also take into account our responsibility of supporting these children throughout their lives? And, of course, their families? Does the Church speak out as much as is needed on this responsibility?''

Are you serious?  The Church speaks out as strong or stronger concerning children and families than any religion or special interest group.  You have to be in a cave to think otherwise or to even ask the question.
Gabriella Necklas | 10/6/2011 - 10:59pm
I think it is important to remember, and sometimes easy to lose sight of, that being pro life extends beyond either the unborn or the dieing and encompasses how we treat all life. It is said that whatever we do to the least among us we do to God. There is perhaps no more vulnerable group than the mentally disabled and as fellow human beings we need to stand up for their needs and their interests. Unfortunately I think until care for the mentally disabled becomes as big of a political issue as abortion or the death penalty there won't be nearly as much discussion about in the public. We have made much progress since Willowbrook, but the deplorable conditions that were present there still exist around the world, as seen in Serbia, and we need to work towards a global change in the perception of the mentally disabled.
JANICE JOHNSON | 10/6/2011 - 8:47pm
Thank you so very much, Bill, for reminding us again of the many needs of our Catholic brothers and sisters who have developmental disabilities, and may I add, mental illnesses.  This month dedicated to the dignity of all life is a good time to reflect on what our church is doing to help our people, many of whom are suffering and in need of compassion, inclusivity and resources.  You asked a very good question.  My answer from what little I know, is not enough. Though, I've heard of parishes that have wonderful ministries and other readers may know of them.

Many parents, such as myself, depend of the state of CA for services and resources for our children.  Some years ago the state passed "The Lanterman Act" which gives certain rights to the developmentally disabled and certain services provided through a network of Regional Centers.  One of the rights is for the person to live in the least restrictive environment.  As a result the state institutions discharged most of their residents to their home communities.   Some communities, school systems and families lacked funding and resources.  A lot of advocacy and political maneuvering took place.  Now, in this economic climate, there is talk of gutting the Lanterman Act nd already services have been cut by the Regional Centers.  It is very anxiety-provoking for me as I am planning for my Childrens' care after I am incapacitated and die.  The least restrictive environment is their own home where they have lilved all of their lives.  But, if my son, who is dually diagnosed with mental illness must be placed out of home, what happens to my daughter?  These are the kinds of grave problems that parents face.

On a postive side, there is an organiztion:  The National Catholic Partnersip on Disability which has resources for dioceses and parishes.  There is also National Catholic Network on Mental Illness.  What is needed is for the parishes to organize a ministry for our children and families using materials from these CAtholic organizations.  I've always thought that the Right to Life organizations should take on this role.

When I saw the video of the Homecoming Queen and her Dad I immediately thought about how much loved she is and how well taken care of by her family.  A beautiful story!

Thanks again,
Janice
we vnornm | 10/6/2011 - 8:08pm
Adrianna,

My reaction was similar to yours! As a future teacher, you will be in a good position to encourage the student body to be sensitive to the peers who have "special needs." Kids pick up the attitudes of the adults around them, and when adults act inclusively, the children pick this up and will act similarly. tx. bvo 
Adriana Cella | 10/6/2011 - 7:35pm
I was not even halfway through watching the Homecoming Queen video when my arms were instantly covered in goosebumps. I was ecstatic to see when the finalist with Down Syndrome won, and I was even happier to think how amazing she must have felt.  This video gave me hope that more individuals with disabilities will be recognized, and that this pro-life trend continues to grow around all the world.  acella
we vnornm | 10/6/2011 - 6:34pm
David and Ed,

Many thanks for reading. Let's hope for more Homecoming Queens (and Kings) from the folks who we term "developmentally disabled." Sad indeed about Serbia...bvo
ed gleason | 10/6/2011 - 4:57pm
Now that's Good News..